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PROJECTS

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EHealth Indicators: Measuring citizens’ access to electronic health data accross EU countries

 

A PROJECT FOR: the European Commission, Directorate-General for Communications Networks, Content and Technology (DG CNECT)

BRIEF

The

Challenge

This project aims to develop a monitoring framework and methodology to measure citizens' access to electronic health data in the EU27 + Iceland and Norway. Its application as a monitoring instrument across the EU will allow for a focused and politically highly relevant reporting mechanism to track Member States’ progress in granting citizens full access to their electronic health data. The target value is 100% of European citizens having Access to electronic health records, such as the patient summary or lab results.

FOCUS

The

Approach

This project starts by creating an overview of data sources and metrics available in the Member States after a comprehensive review of the scientific literature. Then, a list of key EU indicators to measure citizens’ access to medical e-records is developed, and where data is not available the study team engages with stakeholders. A reusable survey tool is developed for collecting data on the indicators and the survey tool is applied to collect data in all Member States + Ireland and Norway.The data gathered during these tasks contribute to the final report, in which a overview of the situation in the EU and individual Member States is provided, with regard to measuring and monitoring progress on the development and adoption of online access to e-medical records in the EU Member States.

CONCLUSIONS

The envisioned result

Our role in the eHealth Indicators project, conducted together with empirica, consists of conducting the following task:

The results will support the European Commission's choice of an eHealth indicators measuring citizens’ access to electronic health records. The results will enable the European Commission to establish common criteria in order to guarantee the same level of accessibility and quality of services for citizens across Europe and to facilitate cross-border healthcare provision.

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Indicator mapping: the set of preliminary found indicators is mapped to the available national level and European Commission data. Here, the key challenge is to provide a consistent, comparable, and harmonized set of data sources that will populate the indicators for evaluating progress on health data accessibility.

Creating a survey tool: this tool is used to collect data on the current situation in the EU with regard to the development of interoperable Electronic Health Record (EHR) systems by member states. 

OTHER PROJECTS

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KATY: enabling clinicians and clinical researchers to make better therapy decisions for people with cancer 

A project for: European Union (Horizon2020 program)

 

Personalized medicine holds the promise to find tailored, targeted, nearly ‘hand-made’ cures for patients.

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